BDAN is a proud member and support organization for the New York State Bleeding Disorders Coalition. The NYSBDC is a coalition of bleeding disorders patient community organizations and specialty treatment centers from across New York State. The focus of NYSBDC is on monitoring healthcare trends and policy developments at the state level, and helping give the bleeding disorders community a voice and the tools to advocate for greater access to the affordable, quality specialized care we need. 

In addition to monitoring developments and advising the community throughout the year, NYSBDC hosts an annual advocacy program in the state capitol called Albany Days. At Albany Days community members learn advocacy skills, and work together to meet with legislators and host a public education display designed to support our issues. 

To learn more about how NYSBDC serves the bleeding disorders community and the Albany Days program, visit NYSBDC

BDAN is proud to be the organizational home of the New York State Rare Disease Collaborative. 

From the development of the first medications to treat hemophilia in the 1960s, people with bleeding disorders have come a long way over the past 50 years thanks to research, support, and community advocacy. 

NYSRDC is our chance to give back by sharing what we've learned with others affected by rare diseases to help them advocate at the state level for research, treatment, access, and support. We know firsthand how people with rare diseases can face a multitude of challenges, and how by working together they can meet some of those challenges to make life better. 

To learn how NYSRDC serves people with rare disease and their caregivers especially through state-level advocacy visit NYSRDC.