Bleeding Disorders Advocacy Network

Living with a bleeding disorder requires proactive emergency preparedness to ensure timely and appropriate care during a crisis. Click the link for essential tips and resources to help you and your family be better prepared.

Understanding a bleeding disorder can be tough, especially for a child. Bruzer Buddies are designed to be interactive educational tools created to make learning about the signs and symptoms of bleeding disorders safe, simple, and reassuring for the whole family. 

Rooted in the timeless power of oral traditions and community gatherings, the Ziggy Stick collective of activities offer a hands-on, tangible way for groups to bond, celebrate milestones, and preserve their shared history. 

BDAN is the organizational home of the New York State Rare Disease Collaborative. NYSRDC is our way of sharing what we've learned to help others affected by rare diseases to advocate at the state level for research, treatment, access, and support.  

BDAN is a proud member and support organization for the New York State Bleeding Disorders Coalition. The NYSBDC is a coalition of bleeding disorders patient community organizations and specialty treatment centers from across New York State. 

Since 2005, BDAN has offered families and individuals with bleeding disorders from across New York State opportunities to learn, connect, and play at retreat programs in the splendor of the Adirondacks.