Helpful information to have available in case of emergency

Basic info

• Name

• Date of birth

• Address

• Photo

• Weight (for dosing)

• Copy of insurance card

• Emergency contact numbers

General medical info

• List of all medications and dosages

• Allergies

• Past surgeries

• Immunizations

• Last time in the ER

• Other medical conditions

General bleeding disorder-related info

• HTC/hematologist’s phone number

• Preferred ER (has relationship with HTC and/or carries factor)

• Name of bleeding disorder, including type and severity (if applicable)

• Which factor is missing/doesn’t work properly that causes the bleeding disorder

• Name of medication you normally receive to treat bleeding

• Name of medications you could possibly receive to treat your bleeding disorder

• Travel/emergency letter from HTC/hematologist

• Medical affairs phone number

Factor users

• Primary prophylaxis: schedule and dosage

• Dosage for minor/moderate/major bleeding episodes or recommended treatment protocol

• Whether you infuse and keep factor at home and how you typically infuse (IV, port, etc)

• Location of PICC or port (if applicable)

• Inhibitor status

• Note in travel/emergency letter from HTC/hematologist stating patient/parent is trained to administer infusions (if applicable)

Consult treatment center/hematologist regarding their recommendations for the following (if applicable)

• ER might need to use factor/medication brought in from home (especially if they don’t carry it)

• Patient authorized to mix own factor

• Factor to be administered prior to any diagnostic testing

• Treatment protocol regarding head injuries (treat with or without symptoms)